This study aims to help babies born with Hypoplastic Left Heart Syndrome (HLHS). This means the left side of the baby's heart is too small to work right. The study is part of a national project, called the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC). This project collects important information from babies up to 12 months old. The goal is to make sure doctors everywhere follow the best steps when treating these babies. The study also wants to involve parents in making care better. To be part of this study, your baby must be diagnosed with HLHS or a similar heart problem and planned to have a surgery called the Norwood procedure.
- Duration: Data collected from diagnosis until your baby is 12 months old.
- Participation: Parents play an important role in the study.
- Eligibility: Babies with HLHS or similar heart issues, planning for Norwood surgery.
There are no risks listed, but it's important to talk to your doctor about what being part of this study means for you and your baby.