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National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

Join us to improve care for kids with complex heart conditions.

Recruiting
15 years and younger
All
Phase N/A

This study aims to help babies born with Hypoplastic Left Heart Syndrome (HLHS). This means the left side of the baby's heart is too small to work right. The study is part of a national project, called the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC). This project collects important information from babies up to 12 months old. The goal is to make sure doctors everywhere follow the best steps when treating these babies. The study also wants to involve parents in making care better. To be part of this study, your baby must be diagnosed with HLHS or a similar heart problem and planned to have a surgery called the Norwood procedure.

  • Duration: Data collected from diagnosis until your baby is 12 months old.
  • Participation: Parents play an important role in the study.
  • Eligibility: Babies with HLHS or similar heart issues, planning for Norwood surgery.

There are no risks listed, but it's important to talk to your doctor about what being part of this study means for you and your baby.

Study details
    Hypoplastic Left Heart Syndrome (HLHS)

NCT02852031

Children's Hospital Medical Center, Cincinnati

13 December 2024

Step 1 Get in touch with the nearest study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

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Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

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The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

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Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

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Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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