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ATHN Transcends: A Natural History Study of Non-Neoplastic Hematologic Disorders

Join our study on blood disorders to help us learn more.

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Phase N/A

ATHN Transcends is a study looking at blood disorders that are not cancerous (non-neoplastic). The goal is to understand how safe and effective different treatments are over time. Participants will be followed for at least 15 years in about 150 locations connected to the American Thrombosis and Hemostasis Network (ATHN). The study involves different groups called cohorts, like Hemophilia or Von Willebrand Disease, each with unique requirements.

  • Study Duration: Participants are involved for a minimum of 15 years.
  • Visits: Data is collected at the start, then quarterly, annually, and sometimes in between.
  • Eligibility: Must have a blood disorder like Hemophilia or others listed, and be able to consent to the study.

Each cohort focuses on specific conditions. For example, the Hemophilia group studies treatments for types A and B of this condition. Some groups, like the Von Willebrand Disease or Rare Disorders, are not currently open for new participants. To join, you need to meet certain criteria and be willing to participate in study activities. There are no direct exclusions for most groups, but some require specific medical histories or conditions. Consider if you can commit to this long-term study before enrolling.

Study details
    Hematologic Disorder
    Bleeding Disorder
    Connective Tissue Disorder
    Hemophilia
    Thrombosis
    Von Willebrand Diseases
    Thrombophilia
    Rare Bleeding Disorder
    Platelet Disorder
    Factor IX Deficiency
    Factor VIII Deficiency
    Thalassemia
    Sickle Cell Disease

NCT04398628

American Thrombosis and Hemostasis Network

15 March 2025

Step 1 Get in touch with the nearest study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

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The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

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Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

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Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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