Stem cell transplants can lead to a condition called chronic graft-versus-host-disease (cGVHD), which causes uncomfortable symptoms and affects children's quality of life. This study is creating a new questionnaire for kids aged 5-17 to describe their symptoms better. The goal is to help doctors understand how these symptoms affect kids and improve care. The study is divided into two parts.
In **Project 1**, children and their parents will fill out a questionnaire about the child's symptoms. They will then discuss their answers with researchers to make sure the questions are easy to understand. **Project 2** involves filling out improved questionnaires at three different times to check the reliability and effectiveness of the questions.
- **Participants**: Kids aged 5-17 with cGVHD and their parents/guardians.
- **Duration**: Involves multiple questionnaires and interviews over time.
- **Compensation**: No specific mention of compensation.
This study helps improve how we measure and understand symptoms in children with cGVHD, aiming for better treatments in the future.