Frontotemporal Lobar Degeneration (FTLD) is a brain disease that affects behavior and language. The ALLFTD study looks at people with FTLD and their families. It helps experts understand the disease better over time. There are two parts: the longitudinal arm and the biofluid-focused arm. The longitudinal arm includes yearly check-ups, brain scans, and tests. The biofluid-focused arm collects samples like blood without detailed tests.
Who can join?
- People from families with FTLD genes or history.
- People with FTLD symptoms but no family history.
Who cannot join?
- People with other brain conditions like tumors.
- People with Alzheimer's disease or other major health issues.
Key Points:
- Study has two parts: annual check-ups or sample collection.
- Participants can be from families with FTLD or have FTLD symptoms.
- Excludes those with other brain or severe health conditions.
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