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The National Amyotrophic Lateral Sclerosis Registry

Join the National ALS Registry to help advance research.

Recruiting
18 years and older
All
Phase N/A

Amyotrophic Lateral Sclerosis (ALS) is a disease that affects the nerve cells in the brain and spinal cord, leading to loss of muscle control. The National ALS Registry aims to collect information about how common ALS is in the United States and to study factors that might be linked to it, like environment and job types. The registry also looks at who gets ALS, such as age, race, gender, and family history, and how it connects to other similar disorders.

People with ALS can join this registry to help doctors learn more about the disease. By signing up, they might take part in clinical trials, which are studies that test new ways to treat or understand ALS.

  • Participants must be U.S. citizens and 18 years or older.
  • No specific exclusion criteria are mentioned, so it's open to all who meet the age and citizenship requirements.
  • There is no mention of compensation or specific risks, but participants should inquire about these before joining.
Study details
    Amyotrophic Lateral Sclerosis

NCT01772602

Centers for Disease Control and Prevention

13 December 2024

Step 1 Get in touch with the nearest study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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