Amyotrophic Lateral Sclerosis (ALS) is a disease that affects the nerve cells in the brain and spinal cord, leading to loss of muscle control. The National ALS Registry aims to collect information about how common ALS is in the United States and to study factors that might be linked to it, like environment and job types. The registry also looks at who gets ALS, such as age, race, gender, and family history, and how it connects to other similar disorders.
People with ALS can join this registry to help doctors learn more about the disease. By signing up, they might take part in clinical trials, which are studies that test new ways to treat or understand ALS.
- Participants must be U.S. citizens and 18 years or older.
- No specific exclusion criteria are mentioned, so it's open to all who meet the age and citizenship requirements.
- There is no mention of compensation or specific risks, but participants should inquire about these before joining.