The CureDuchenne Link® is a special project collecting health information and samples from people with Duchenne Muscular Dystrophy (DMD) or Becker Muscular Dystrophy (BMD), both of which are diseases that affect muscles, or those who carry the DMD/BMD genes. A carrier has a gene for a disease but may not show symptoms. People who are 4 weeks old or older can join. Parents or guardians can sign up their children. Participants can use a smartphone or computer to join and receive news about research and community programs. Information gathered is stored safely and used by approved scientists to study DMD, BMD, and other similar diseases. This helps researchers develop new treatments. To join, a person must have a DMD/BMD diagnosis or be a known carrier, and give consent to participate. They cannot be a foster child, ward of the state, or a prisoner.

• Participation is virtual and can be nationwide.
• Data is securely stored and used for research.
• Participants receive updates on research and programs.