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Friedreich Ataxia Global Clinical Consortium UNIFIED Natural History Study

Join our Friedreich Ataxia study to help advance research.

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Phase N/A

The UNIFAI Study is a global research project to learn about Friedreich's Ataxia (FA), a rare genetic illness. FA affects the brain and heart, and is caused by changes in the FXN gene. This study will look at how FA progresses over time by checking participants once a year for up to 25 years. These checks will include tests like walking, hand movements, and talking about how FA affects daily life. The study is not testing any new drugs, but the information collected could help develop future treatments. It's part of a bigger effort that combines research from different countries to better understand FA and improve life for those who have it.

Key Points:
  • Annual visits for up to 25 years; no new drugs tested.
  • Participants must have a confirmed FA diagnosis; all ages welcome.
  • Participation requires informed consent; compensation not mentioned.
Study details
    Friedreich Ataxia

NCT06016946

Friedreich's Ataxia Research Alliance

23 February 2025

Step 1 Get in touch with the nearest study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

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