The UNIFAI Study is a global research project to learn about Friedreich's Ataxia (FA), a rare genetic illness. FA affects the brain and heart, and is caused by changes in the FXN gene. This study will look at how FA progresses over time by checking participants once a year for up to 25 years. These checks will include tests like walking, hand movements, and talking about how FA affects daily life. The study is not testing any new drugs, but the information collected could help develop future treatments. It's part of a bigger effort that combines research from different countries to better understand FA and improve life for those who have it.
Key Points:- Annual visits for up to 25 years; no new drugs tested.
- Participants must have a confirmed FA diagnosis; all ages welcome.
- Participation requires informed consent; compensation not mentioned.
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