Pulmonary Hypertension Association Registry (PHAR) is a study for people with specific types of lung disease: pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). These are conditions where blood pressure is too high in the lungs. The study gathers information from patients at special care centers across the U.S. to see how they are tested and treated.
It aims to find out if patients are being treated according to expert recommendations and to identify factors that might lead to better or worse health results. Participants share details about their health, treatments, and lifestyle over time, which helps doctors provide better care.
Who can join? Anyone with PAH, CTEPH, or certain types of lung disease-related PH, who has visited a care center in the last six months, can join.
- The study follows participants over time to track their health progress.
- Participants need to give written consent to share their health information.
- It's important to visit a participating care center within six months of diagnosis.