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Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease Prospective Outcomes Registry

Tracking outcomes for lung diseases like IPF and ILD.

Recruiting
30 years and older
All
Phase N/A

Idiopathic Pulmonary Fibrosis (IPF) is a disease that causes scarring in the lungs, making it hard to breathe. This study is about understanding IPF and other similar lung diseases, called Interstitial Lung Diseases (ILDs). The study collects information over several years to learn how these diseases change and how they are treated. Participants will have to provide blood samples and undergo chest imaging, which are pictures of the lungs. The study looks at how these diseases progress and affect quality of life.

To join, you must be at least 21 years old and recently diagnosed with IPF or another ILD. Some key tests include checking lung function using measurements like FVC (Forced Vital Capacity) and DLCO (Diffusing Capacity of the Lungs for Carbon Monoxide), which tell us how well the lungs are working.

Key Points:

  • The study lasts 3 to 5 years and involves regular check-ups and tests.
  • Participants need to give informed consent and be willing to share medical information.
  • Those with recent cancer or already on a lung transplant list cannot join.
Study details
    Idiopathic Pulmonary Fibrosis
    Interstitial Lung Disease

NCT01915511

Duke University

5 January 2025

Step 1 Get in touch with the nearest study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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