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Intervention For AYAS With Cancer Risk Syndromes

Trial for young adults with cancer risk syndromes.

Recruiting
12-24 years
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

This research aims to improve how young people with cancer risk syndromes, called AYAs, talk about their condition and make decisions. A "cancer risk syndrome" is when certain gene changes make someone more likely to get cancer. The study uses a tool called AYA-RISE to help with communication. The study involves three parts:

  • Aim 1: Participants will use and review AYA-RISE and give feedback. This part includes 30-minute interviews.
  • Aim 2: Participants are split into two groups. One group gets standard genetic counseling, and the other gets counseling plus access to AYA-RISE.
  • Aim 3: The study will conduct interviews to understand how well AYA-RISE is working.

Key Points:

  • Participants include AYAs aged 12-24 with cancer risk syndromes, caregivers, and healthcare providers.
  • Involves surveys, interviews, and using a chatbot and online portal.
  • Participants can opt for standard genetic counseling or counseling with AYA-RISE.
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Study details
    Cancer Risk Syndrome

NCT04323774

Dana-Farber Cancer Institute

2 February 2025

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