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Parkinson's Foundation PD GENEration Genetic Registry

Join our Parkinson's genetic study to help advance research!

Recruiting
18 years and older
All
Phase N/A

The Parkinson's Foundation PD GENEration Genetic Registry is a study to collect and save genetic data from people with Parkinson's Disease (PD) for future research. A genetic registry is like a big library of DNA information, which helps researchers understand PD better. Participants give permission to store their DNA after genetic testing. This testing will check genes related to PD, like GBA and LRRK2, and others like SNCA and VPS35.

To join, participants must have a probable diagnosis of PD and agree to genetic testing. They must be able to understand and sign consent forms, and complete study activities, like surveys, either online or in person. People with other parkinsonian disorders, recent blood transfusions, blood cancers, or bone marrow transplants cannot join. Participants must be 18 or older.

  • The study is open for people with PD now but not for those at risk.
  • Participants will undergo genetic testing and receive results.
  • They need to provide informed consent and complete surveys.
Study details
    Parkinson's Disease

NCT04994015

Parkinson's Foundation

13 December 2024

Step 1 Get in touch with the nearest study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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