The Parkinson's Foundation PD GENEration Genetic Registry is a study to collect and save genetic data from people with Parkinson's Disease (PD) for future research. A genetic registry is like a big library of DNA information, which helps researchers understand PD better. Participants give permission to store their DNA after genetic testing. This testing will check genes related to PD, like GBA and LRRK2, and others like SNCA and VPS35.
To join, participants must have a probable diagnosis of PD and agree to genetic testing. They must be able to understand and sign consent forms, and complete study activities, like surveys, either online or in person. People with other parkinsonian disorders, recent blood transfusions, blood cancers, or bone marrow transplants cannot join. Participants must be 18 or older.
- The study is open for people with PD now but not for those at risk.
- Participants will undergo genetic testing and receive results.
- They need to provide informed consent and complete surveys.