Recruitment and Engagement in Care to Impact Practice Enhancement (RECIPE) for Sickle Cell Disease is a study aimed at helping people with Sickle Cell Disease (SCD) receive better care. SCD is a condition where red blood cells become sickle-shaped, which can cause pain and other health problems. The study seeks to find people with SCD who are not receiving care from specialists and guide them to proper treatment. This process involves using linkage coordinators (trained staff) to connect these individuals to healthcare services. Participants will complete a survey about their treatment history, experiences with clinics and hospitals, and how SCD affects their lives. They can also choose to participate in a 1-hour interview to discuss their thoughts on treatment and quality of life.

Key Points:

• The study involves completing surveys and an optional 1-hour interview.
• Participants must be 18 or older, have confirmed SCD, and not have seen a specialist in over a year.
• Participants must speak English to give consent to participate.